Journal of Cystic Fibrosis
Volume 10, Supplement 2 , Pages S45-S52, June 2011

Guiding principles on how to manage relevant psychological aspects within a CF team: Interdisciplinary approaches

  • Rita M. Nobili

      Affiliations

    • CF Centre, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Milano, Italy
    • Corresponding Author InformationCorresponding author: Rita M Nobili, CF Centre, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Via Commenda 9, 20122 Milano, Italy. Tel.: +39 0255032413; fax: +39 0255032814
  • ,
  • Alistair J.A. Duff

      Affiliations

    • Department of Clinical and Health Psychology, Leeds Teaching Hospitals NHS Trust, Leeds, UK
  • ,
  • Gerald Ullrich

      Affiliations

    • Freelancer (Psychology in Medical Settings), Schwerin, Germany
  • ,
  • Ulrike Smrekar

      Affiliations

    • Department of Medical Psychology and CF Center, Medical University Innsbruck, Austria
  • ,
  • Trudy Havermans

      Affiliations

    • CF Centre, UZ Leuven, Leuven, Belgium
  • ,
  • Mandy Bryon

      Affiliations

    • Paediatric Psychology, Psychosocial and Family Services, Great Ormond Street Hospital for Sick Children NHS Trust, London, UK
  • ,
  • Ula Borawska-Kowalczyk

      Affiliations

    • IMiDz, Klinika Pediatrii, Warsaw, Poland
  • ,
  • Maria Sandberg Malmborg

      Affiliations

    • Skåne University Hospital, Division of Woman, Child and Reproduction, Children's Hospital, Lund, Sweden

Abstract 

Managing CF can be emotionally and physically challenging for patients and their relatives. The disease and its treatment influence the ability to tackle normal tasks of daily living and unexpected life events. The context within which psychologists work varies according to different cultural backgrounds and their professional and theoretical memberships. The benchmarks presented here focus on four crucial issues: (i) identifying a common base of tools and theoretical reflections through suggested readings, (ii) interdisciplinary work within a CF team and its importance for both persons with CF and other healthcare professionals, (iii) the benefits of an eclectic approach utilising cognitive-behavioural theories for specific psychological problems and, (iv) effective and evaluated transition programmes from paediatric to adult healthcare services.

Keywords:  Interdisciplinary team work , Well functioning team , Support reading , Psychological aspects of CF care , Psychological models , Transition strategies

Abbreviations:  CF, cystic fibrosis , EC, European Commission , ECFS, European Cystic Fibrosis Society , EuroCareCF, European Coordination Action for Research in Cystic Fibrosis

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PII: S1569-1993(11)60008-8

doi:10.1016/S1569-1993(11)60008-8

Journal of Cystic Fibrosis
Volume 10, Supplement 2 , Pages S45-S52, June 2011