Cultural issues in cystic fibrosis

Abstract 

Although current numbers of non-Caucasian CF patients are small, collectively they represent sizeable groups and increasingly more is becoming known about the spectrum of mutations in the CFTR gene in different populations. As such it is important to acknowledge that there will be certain sociocultural challenges in interacting with and managing such patients. This paper explores such developments and considers some of the current and future challenges facing those who treat the disease. Techniques applied in other illness contexts for establishing and maintaining effective patient–professional relationships, reviewing patient education, resolving treatment conflicts and improving adherence are discussed, as are the implications for future research.

Keywords:  Cystic fibrosis, Cultural, Ethnicity, Patient–professional relationships, Treatment